MDS-EuropeNews & articles RSS feedhttps://mds-europe.org/ECSG, Department of Health Sciences, University of York2024-03-19T01:25:07ZWebsite UI Version 1.13.1#53585ADD-903E-49F0-A115-1669F3EF7DB82021-09-03T17:50:07+01:002021-09-03T17:50:07+01:00<h4>EHA Endorsement of the European Guidelines for MDS</h4>
<p><em><span class="text-small">3 September 2021</span></em></p>
<p style="margin-bottom:11px">The European Hematology Association (EHA) recently agreed to endorse our online European guidelines on myelodysplastic syndromes (MDS).</p>
<p style="margin-bottom:11px">Explore the guidelines developed by the MDS-RIGHT group under ‘Patient management’.</p>
<p style="margin-bottom:11px"><a href="https://journals.lww.com/hemasphere/Fulltext/2021/09000/EHA_Endorsement_of_the_European_Guidelines_for.8.aspx">Read EHA endorsement</a></p>
news/20210315Multi stakeholder meeting 20212021-03-15T14:29:13Z2021-03-15T14:29:13Z<h4>Multi-stakeholder meeting - 19 March 2021</h4>
<p><em><span class="text-small">12 March 2021</span></em></p>
<p>On the 19<sup>th</sup> of March 2021, the MDS-RIGHT consortium will have a second multi-stakeholder meeting 'European Perspectives on MDS Patient Management'.</p>
<p><a href="https://mds-europe.org/news/20210315">More information</a></p>
#A535CED1-925B-4F51-96CD-93EA6736483A2021-03-10T23:07:40Z2021-03-10T23:07:40Z<h4>Interview with Dr. Marlijn Hoeks </h4>
<p><em><span class="text-small">10 March 2021</span></em></p>
<p>On current blood management practices and need for improvements across Europe, for Blood and Beyond</p>
<p><a href="https://www.bloodandbeyond.com/interview-with-dr-marlijn-hoeks/?mc_cid=861251d296&mc_eid=UNIQID">Read interview</a></p>
https://mds-europe.org/news/20201228Thesis defence2021-01-04T12:12:28Z2021-01-04T12:12:28Z<h4>Thesis</h4>
<p><em><span class="text-small">28 December 2020</span></em></p>
<p>On the 3rd of November 2020, Marlijn Hoeks has successfully defended her PhD Thesis</p>
<p><a href="news/20201228">More information</a></p>
https://mds-europe.org/community/articles/20201029Iron Chelation Therapy 2020-10-29T19:31:49Z2020-10-29T19:31:49Z<h4><a href="https://mds-europe.org/community/articles/20201029">Iron Chelation Therapy for patients with MDS: important or nonsense?</a></h4>
<p class="Standard" style="margin-bottom:.0001pt; margin:0cm 0cm 8pt">Marlijn Hoeks, MD, PhD internist-hematologist, the Netherlands</p>
<p class="Standard" style="margin-bottom:.0001pt; margin:0cm 0cm 8pt"><em>29 October 2020</em></p>
https://mds-europe.org/news/20200309Meeting cancelled2020-03-09T15:38:03Z2020-03-09T15:38:03Z<h4>MDS RIGHT meeting cancelled</h4>
<p><em><span class="text-small">9 March 2020</span></em></p>
<p>The MDS RIGHT meeting scheduled for March 30 has been cancelled.</p>
<p><a href="news/20200309">More information</a></p>
https://mds-europe.org/community/articles/20191031I-CARE for MDS2019-11-01T16:29:14Z2019-11-01T16:29:14Z<h4><a href="https://mds-europe.org/community/articles/20191031"><em>I-CARE for MDS</em>: Development of Guidelines-Based Indicators</a></h4>
<p>Dr. med. Nicolas Bonadies, Austria</p>
<p><em>31 October 2019</em></p>
https://mds-europe.org/community/articles/20190619Canyon between diagnosis and therapy2019-06-19T07:40:40+01:002019-06-19T07:40:40+01:00<h4><a href="https://mds-europe.org/community/articles/20190619">The canyon between diagnosis and therapy in MDS</a></h4>
<p>Bergit Korschan-Kuhle, MDS patient, Germany</p>
<p><em>19 June 2019</em></p>
https://mds-europe.org/news/20190509Professor David Bowen discusses MDS RIGHT2019-05-09T09:17:38+01:002019-05-09T09:17:38+01:00<h4>Professor David Bowen discusses MDS RIGHT</h4>
<p><em><span class="text-small">9 May 2019</span></em></p>
<p><span class="text-small">David Bowen gives an update on MDS RIGHT progress at BSH 2019 in Glasgow</span></p>
<p><a href="https://mds-europe.org/news/20190509">View video</a></p>
https://mds-europe.org/community/articles/20190305Finding the right numbers for myelodysplastic syndromes2019-03-05T14:34:33Z2019-03-05T14:34:33Z<h4><a href="https://mds-europe.org/community/articles/20190305">Finding the right numbers for myelodysplastic syndrome</a></h4>
<p>Inga Mandac Rogulj, MD, Clinical Hospital Merkur, Croatia</p>
<p><em>5 March 2019</em></p>
https://mds-europe.org/community/articles/20181218The importance of assessment of quality of life2018-12-18T14:48:27Z2018-12-18T14:48:27Z<h4><a href="https://mds-europe.org/community/articles/20181218">Assessment of Quality of life should be part of patient care in patients with MDS</a></h4>
<p>Ass. Prof. Reinhard Stauder, Inssbruck Medical University, Austria</p>
<p><em>18 December 2018</em></p>
https://mds-europe.org/media/newslettersNewsletter issue 22018-11-13T10:50:52Z2018-11-13T10:50:52Z<h4>Newsletter Issue 2</h4>
<p><span class="text-small"><em>13 November 2018</em></span></p>
<p>Read our new newsletter to find out what's been happening with MDS RIGHT</p>
<p><a href="https://mds-europe.org/media/newsletters">Newsletters page</a></p>
https://mds-europe.org/news/20180914MDS manifesto published2018-09-27T11:01:23+01:002018-09-27T11:01:23+01:00<h4>MDS Manifesto published </h4>
<p><span class="text-small"><em>14 September 2018</em></span></p>
<p>Join us in our call to improve the care for patients with MDS</p>
<p><a href="https://mds-europe.org/news/20180914">Get more information</a></p>
https://mds-europe.org/community/articles/20180814Challenge of providing equal access to care2018-08-14T15:22:24+01:002018-08-14T15:22:24+01:00<h4><a href="https://mds-europe.org/community/articles/20180814">The challenge of providing equal access to care - will EuroBloodNet make a difference?</a></h4>
<p>Dr. María del mar Manu Pereira, Hospítal Clinic de Barcelona, Spain</p>
<p><em>14 August 2018</em></p>
https://mds-europe.org/community/articles/20180628Managing MDS in Eastern Europe: challenges and solutions2018-08-01T14:59:01+01:002018-08-01T14:59:01+01:00<h4 style="margin: 0cm 0cm 8pt;"><a href="https://mds-europe.org/community/articles/20180628"><span class="text-accented">Managing MDS in Eastern Europe: challenges and solutions</span></a></h4>
<p style="margin: 0cm 0cm 8pt;">Prof. Aleksandar Savic, Clinical Centre of Vojvodina, Serbia</p>
<p style="margin: 0cm 0cm 8pt;"><em>28 June 2018</em></p>
https://mds-europe.org/community/articles/20180517Seed & soil: the challenges of MDS treatment2018-05-17T09:47:00+01:002018-05-17T09:47:00+01:00<h4><a href="https://mds-europe.org/community/articles/20180517">Seed and soil: the challenges of MDS treatment</a></h4>
<p>Dr. Rena Buckstein, Sunnybrook health sciences centre, Canada</p>
<p><em>17 May 2018</em></p>
https://mds-europe.org/community/articles/20180228I'm gonna lay down my burden2018-02-28T09:01:00Z2018-02-28T09:01:00Z<h4><a href="https://mds-europe.org/community/articles/20180228">I’m gonna lay down my burden …</a></h4>
<p>Bergit Korschan-Kuhle, MDS patient, Germany</p>
<p><em>28 February 2018</em></p>
https://mds-europe.org/community/articles/20180109Role of allogeneic stem cell transplantation2018-01-09T11:24:04Z2018-01-09T11:24:04Z<h4><a href="https://mds-europe.org/community/articles/20180109">The role of allogeneic hematopoietic stem cell transplantation for patients with Myelodysplastic Syndromes</a></h4>
<p>Prof. Theo de Witte, Radboud University Medical Centre, Netherlands</p>
<p><em>9 January 2018</em></p>
https://mds-europe.org/news/20171124Meeting on updating international MDS guidelines2017-11-24T11:44:43Z2017-11-24T11:44:43Z<h4><span class="text-accented">MDS-RIGHT partners gathered in Milan to work on updating international MDS guidelines</span></h4>
<p><span class="text-small"><em>October 2017</em></span></p>
<p><a href="https://mds-europe.org/news/20171124">More information</a></p>
https://mds-europe.org/community/articles/20171031When should ESA's be started in lower risk MDS? 2017-10-31T14:41:28Z2017-10-31T14:41:28Z<h4><a href="https://mds-europe.org/community/articles/20171031">When should erytropoietic stimulating agents be started in lower-risk MDS?</a></h4>
<p>Prof. Eva Hellström-Lindberg, Karolinska Instituted, Sweden</p>
<p><em>31 October 2017</em></p>
https://mds-europe.org/community/articles/05102017Still CARPE DIEM2017-10-05T07:27:49+01:002017-10-05T07:27:49+01:00<h4><a href="https://mds-europe.org/community/articles/05102017"><span class="text-accented">Still CARPE DIEM</span></a><a href="https://mds-europe.org/community/articles/05102017"> -<em> a patients perspective on transfusions</em></a></h4>
<p>Bergit Korschan-Kuhle, MDS patient, Germany</p>
<p><em>5 October 2017</em></p>
https://mds-europe.org/community/articles/05092017Importance of geriatric assessment at diagnosis2017-09-05T11:51:02+01:002017-09-05T11:51:02+01:00<h4><a href="https://mds-europe.org/community/articles/05092017"><span class="text-accented">Importance of geriatric assessment of MDS patients at diagnosis</span></a></h4>
<p>Corien Eeltink, nursing specialist hematology, VUmc, Netherlands</p>
<p><em>31 August 2017</em></p>
https://mds-europe.org/news/20170817Press release 2017-08-17T07:12:34+01:002017-08-17T07:12:34+01:00<h4><span class="text-accented">Press release - Stakeholders agree on what is needed to improve care of MDS patients </span></h4>
<p><span class="text-small"><em>17 August 2017</em></span></p>
<p><a href="news/20170817">Read press release</a></p>
https://mds-europe.org/community/articles/20170718Blood transfusions good, iron overload bad. Not so simple2017-07-18T13:10:35+01:002017-07-18T13:10:35+01:00<h4><a href="https://mds-europe.org/community/articles/20170718">Which patients need more blood transfusions to improve quality of life and can we identify the patients who need iron chelation more precisely?</a></h4>
<p>Prof. David Bowen, Leeds Teaching Hospitals NHS Trust, UK</p>
<p><em>18 July 2017</em></p>
https://mds-europe.org/community/articles/20170629Cost-effectiveness analysis: what and why? 2017-07-11T12:19:32+01:002017-07-11T12:19:32+01:00<h4><a href="https://mds-europe.org/community/articles/20170629">Cost-effectiveness analysis: what is it and why is it important for clinical practice?</a></h4>
<p>Prof. Andrea Manca, University of York, UK</p>
<p><em>29 June 2017</em></p>
https://mds-europe.org/community/articles/20170613Improving MDS patient management in Europe2017-06-13T11:20:53+01:002017-06-13T11:20:53+01:00<h4><a href="https://mds-europe.org/community/articles/20170613"><span class="text-accented">Improving MDS patient management in Europe — and what you can do right away</span></a></h4>
<p>MDS-RIGHT consortium</p>
<p><em>13 June 2017</em></p>
https://mds-europe.org/community/articles/20170411MDS patients speak out2017-04-11T14:31:15+01:002017-04-11T14:31:15+01:00<h4><a href="https://mds-europe.org/community/articles/20170411">MDS patients speak out</a></h4>
<p>Patrick Festy, Connaitre et combattre les myélosdysplasies (CCM)</p>
<p><em>11 April 2017</em></p>
https://mds-europe.org/news/20170330aNew community section2017-03-30T15:50:49+01:002017-03-30T15:50:49+01:00<h4>Community section now live</h4>
<p><span class="text-small"><em>21 March 2017</em></span></p>
<p><a href="https://mds-europe.org/news/20170330a">Find out more </a></p>
https://mds-europe.org/news/20170330MDS stakeholder meeting2017-03-30T15:42:17+01:002017-03-30T15:42:17+01:00<h4>European perspectives on MDS patient management </h4>
<p><span class="text-small"><em>8 May 2017</em></span></p>
<p><a href="https://mds-europe.org/news/20170330">Report from the stakeholder meeting</a> </p>
https://mds-europe.org/community/articles/20170321Can MDS specialists review more patients2017-03-21T16:16:25Z2017-03-21T16:16:25Z<h4><a href="https://mds-europe.org/community/articles/20170321">Can MDS specialists review (and help) more MDS patients please?</a></h4>
<p><span class="text-large">Professor David Bowen, </span>Leeds Teaching<span class="text-deemphasised"> </span><span class="text-large">Hospitals </span>NHS Trust, UK</p>
<p><em>21 March 2017</em></p>