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The information on this website is directly or indirectly related to the MDS-RIGHT project. This project is a European research project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No. 634789. Dissemination of results on this website and/or communication of activities reflect only the view of the MDS-RIGHT project partners and invited contributors. The European Commission is not responsible for any use that may be made of the information this website contains.

To the full extent permitted by the applicable laws, University of York and Radboudumc as participants to the MDS-RIGHT consortium (herinafter "MDS_Right") consortium disclaim responsibility for the topicality, correctness, completeness or quality of the information provided. Liability claims regarding damage caused by the use of any information provided, including any kind of information which is incomplete or incorrect, will therefore be rejected. All offers are not-binding and without obligation. Parts of the pages or the complete publication including all offers and information might be extended, changed or partly or completely deleted by the author without separate announcement.

All medical content on this site has been developed, reviewed, and monitored independently by physicians specializing in the particular field. All content and medical information provided in threaded forums is monitored and reviewed by physicians.

All research and clinical material published by MDS-RIGHT on this website is for informational purposes only. Readers are encouraged to cross-confirm the correctness of information contained herein with other sources.

Patients and consumers should review the information carefully with their professional health care provider. The information is not intended to replace medical advice offered by physicians. MDS-RIGHT will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising therefrom.

The website owner is committed to honouring or exceeding the legal requirements of medical/health information privacy that apply in the Netherlands, and to offering special protections for any personal health information you choose to share with us fact.

Referrals and links

MDS-RIGHT is not responsible for any contents linked or referred to from his pages - unless it has full knowledge of illegal contents and would be able to prevent the visitors of his site from viewing those pages. If any damage occurs by the use of information presented here, only the author of the respective pages might be liable, not the one who has linked to these pages. Furthermore the author is not liable for any postings or messages published by users of discussion boards, guestbooks or mailing lists provided on his page.


The author intended not to use any copyrighted material for the publication without the copyright holder’s permission or, if not possible, to indicate the copyright of the respective object.

The copyright for any material created by the author is reserved. Any duplication or use of objects such as images, diagrams, sounds or texts in other electronic or printed publications is not permitted without the author's agreement.

Privacy policy

Update - 24 May 2018

What personal data do we collect and how is it collected?

When MDS-RIGHT partners and stakeholders enrol onto our mailing list via we collect name, email address, role and/or stakeholder group and study centre/organisation (where relevant).  This data is provided by the individual registrant through completion of our registration forms.  

Who collects this data?

Data is collected by the University of York, UK.

Why is this data being collected and how will it be used?

We will use your contact details to inform you of study progress and to disseminate research output and updates to guidelines. We may also contact you to ask for your input into projects undertaken as part of the study and to invite you to meetings and events.

Will we share your personal data?

Contact details are shared with the MDS-RIGHT Project Management Team at Radboud University UMC, Nijmegen via our secure web system.  All personal data are stored securely and can only accessed by a restricted number of people involved in running the MDS-RIGHT project.

Is it possible to opt out?

Email communications from MDS-RIGHT contain links to allow you to unsubscribe from our mailing list or you can manage your contact preferences at any time via

If the opportunity for the input of personal or business data (email addresses, name, addresses) is given, the input of these data takes place voluntarily. The use and payment of all offered services are permitted - if and so far technically possible and reasonable - without specification of any personal data or under specification of anonymized data or an alias. The use of published postal addresses, telephone or fax numbers and email addresses for marketing purposes is prohibited, offenders sending unwanted spam messages will be punished.

Any personal information provided voluntarily by the visitors of our website remains confidential. By browsing, reading pages or downloading information from our website, certain technical information about the visit is gathered and stored automatically. None of this information is shared with any third party.

This website uses Google Analytics, a web analytics service provided by Google, Inc. ("Google"). Google Analytics uses "cookies", which are text files placed on your computer, to help the website analyse how users use the site. The information generated by the cookie about your use of the website (including your IP address truncated by the last octet prior to its storage using the "_anonymizeIp()" method) will be transmitted to and stored by Google on servers in the United States. Google will use this information for the purpose of evaluating your use of the website, compiling reports on website activity for website operators and providing other services relating to website activity and internet usage. Google may also transfer this information to third parties where required to do so by law, or where such third parties process the information on Google’s behalf. Google will not associate your IP address with any other data held by Google. You may refuse the use of cookies by selecting the appropriate settings on your browser, however please note that if you do this you may not be able to use the full functionality of this website. By using this website, you consent to the processing of data about you by Google in the manner and for the purposes set out above.

If you do not want Google Analytics to collect data, please install the Google Analytics Opt-out Browser Add-on.

Conflict of interest

There is no conflict of interest with any company or commercial institution.

Legal validity of this disclaimer

This disclaimer is to be regarded as part of the internet publication which you were referred from. If sections or individual terms of this statement are invalid, the content or validity of the other parts remain uninfluenced by this.