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Myelodysplastic syndrome


Welcome to MDS Europe - the online home of the MDS-RIGHT project and the future hub for all European MDS (myelodysplastic syndromes) information and guidance.

On our pages you will find detailed information about MDS-RIGHT including the project's work packages, deliverables and the extensive team of project partners.

What's New

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EHA Endorsement of the European Guidelines for MDS

3 September 2021

The European Hematology Association (EHA) recently agreed to endorse our online European guidelines on myelodysplastic syndromes (MDS).

You find the guidelines developed by the MDS-RIGHT group under ‘Patient management’.

Read EHA endorsement

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Second Multi-stakeholder meeting - 19th of March 2021

12 March 2021

This meeting will give you the opportunity to gain new insights and exchange of views with other MDS stakeholders.

Find out more

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Out of Shape - a Patient Story

An autobiography illustrating life after an MDS diagnosis, written by Bergit Korschan-Kuhle and published by the MDS-Foundation

In this book, she takes you on a journey from her first symptoms over a decade ago to the present day

Link to Bergit's story

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First EUMDS patient-centered Newsletter

December 2020

Download newsletter

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28 December 2020

On the 3rd of November 2020, Marlijn Hoeks has successfully defended her PhD Thesis

More information

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Iron Chelation Therapy for patients with MDS: important or nonsense?

Marlijn Hoeks, MD, PhD internist-hematologist, the Netherlands

29 October 2020

Read more

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Meeting cancelled

Due to the coronavirus outbreak, our upcoming MDS RIGHT/EUMDS meeting in Mannheim has been cancelled

Further information

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We need your feedback!

We're collecting feedback from MDS Europe visitors via our survey

Survey link

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Patient Management section now live

Explore our diagnostic, prognostic and treatment guidelines

Patient management section

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MDS-RIGHT Newsletter issue 2

Read our new newsletter to find out what's been happening with MDS RIGHT

Newsletters page

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MDS Manifesto published 

Join us in our call to improve the care for patients with MDS

Get more information

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Register with MDS Europe

Tell us your email address to receive our newsletter

Registration page

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Privacy policy

24 May 2018

We've updated our privacy policy and would like to share it with you

Read our updated policy