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Patient organisations

Links to local patient organisations and charities by country.

Albania  |  Armenia  |  Austria  |  Azerbaijan  |  Belarus  |  Belgium  |  Bosnia and Herzegovina  |  Bulgaria  |  Croatia  |  Cyprus  |  Czech Republic  |  Denmark  |  Estonia  |  Finland  |  France  |  Georgia  |  Germany  |  Greece  |  Hungary  |  Iceland  |  Ireland  |  Israel  |  Italy  |  Kazakhstan  |  Kosovo  |  Latvia  |  Lithuania  |  Luxembourg  |  Malta  |  Moldova  |  Monaco  |  Montenegro  |  Norway  |  Poland  |  Portugal  |  Romania  |  Russia  |  Serbia  |  Slovakia  |  Slovenia  |  Spain  |  Sweden  |  Switzerland  |  The former Yugoslav Republic of Macedonia  |  The Netherlands  |  Turkey  |  Ukraine  |  United Kingdom

Albania

There are no patient organisations currently listed for this country.

Armenia

Armenian Association of Hematology and Oncology

Austria

Myelom- und Lymphomhilfe Österreich

"Senioren-Krebshilfe Tirol"

Azerbaijan

There are no patient organisations currently listed for this country.

Belarus

There are no patient organisations currently listed for this country.

Belgium

Belgische MDS Contactgroep

Stichting tegen Kanker

Fondation contre le Cancer

Bosnia and Herzegovina

There are no patient organisations currently listed for this country.

Bulgaria

Bulgarian Association for Patients Defence

Croatia

HULL - Croatian Leukemia and Lymphoma Society

Cyprus

There are no patient organisations currently listed for this country.

Czech Republic

Občanské sdružení Diagnóza MDS - no longer active

Denmark

LyLe, Patientforeningen for ymfekræft, Leukæmi og MDS (Organistation for Lymphoma, Leukemia and MDS patients)

MDS DK Patientstøttegruppe (MDS DK Patient Support Group)

Børnecancerfonden (Blood Cancer Foundation)

Kræftens Bekæmpelse (Danish Cancer Society)

Estonia

Eesti Leukeemia ja Lümfoomihaigete Liit (Estonian Leukaemia and Lymphoma Patients Society)

Finland

Suomen Syöpäpotilaat ry (Association of Finnish Cancer Patients) - Myelodysplastiset oireyhtymät (MDS) potilaan opas

France

CCM, Connaître et Combattre les Myélodysplasies

Georgia

There are no patient organisations currently listed for this country.

Germany

MDS-Patienten Interessengemeinschaft, Deutschland (MDS-PAT-IG)

MDS NET Deutschland e.V.

Deutsche Leukämie- & Lymphom-Hilfe e.V. (DLH)

Greece

Ομοσπονδία Καρκινοπαθών Ελλάδος "ΟΚΕ" (Hellenic Federation of Cancer Patients)

Hungary

Magyar Onkohematológiai Betegekért Alapítvány ― MOHA (Foundation for Hungarian Onco-haematological Patients; incl. MDS Patient Support Group)

Iceland

Krabbameinsfélagið Icelandic Cancer Society (ICS)

Ireland

MDS Support Group Ireland & Northern Ireland

Irish Cancer Society (ICS)

Israel

TAMID - The Israeli Association for Myelodysplastic Syndromes (The Israeli MDS Foundation)

Italy

AIL - Associazione Italiana contro le Leucemie-Linfomi e Mieloma onlus

Associazione Malattie del Sangue

Kazakhstan

There are no patient organisations currently listed for this country.

Kosovo

There are no patient organisations currently listed for this country.

Latvia

Leikēmijas slimnieku atbalsta biedrība (Association of Support for Leukaemia Patients)

Luxembourg

There are no patient organisations currently listed for this country.

Malta

There are no patient organisations currently listed for this country.

Moldova

There are no patient organisations currently listed for this country.

Monaco

There are no patient organisations currently listed for this country.

Montenegro

There are no patient organisations currently listed for this country.

Norway

Blodkreftforeningen (Blood Cancer Foundation)

Poland

Stowarzyszenie Pomocy Chorym na Nowotwory Krwi (The Association for Blood Cancer Patients Aid)

Portugal

Associação Portuguesa Contra a Leucemia (APCL)

Associação Portuguesa de Leucemias e Linfomas, APLL (Portuguese Leukemia and Lymphoma Association)

Romania

Asociația Română împotriva Leucemiei (ARIL; Romanian Leukaemia Association)

Russia

Мост милосердия

Всероссийское Общество ОнкоГематологии «Содействие» (“Sodeystvie” CML patient support group)

МОО «Общество помощи пациентам с онкогематологическими заболеваниями» (Onco-Hematology Patients Help Society)

Serbia

There are no patient organisations currently listed for this country.

Slovakia

Združenie pacientov s hematologickými malignitami (Association of Patients with Hematological Maligancies)

Slovenia

Slovensko združenje bolnikov z limfomom in levkemijo, L&L (Slovenian Lymphoma and Leukemia Patient Association)

DRUŠTVO BOLNIKOV S KRVNIMI BOLEZNIMI (Association of Patients with Blood Diseases)

Spain

AEAL, Asociación Española de Afectados por Linfoma, Mieloma y Leucemia

ASCOL, Asociación contra la leucemia y enfermedades de la sangre

Sweden

Blodcancerförbundet

Switzerland

There are no patient organisations currently listed for this country.

The former Yugoslav Republic of Macedonia

Association of citizens for rare diseases “Life With Challenges”

The Netherlands

Stichting Hematon - Patiëntenorganisatie bloedkanker, lymklierkanker stamceltransplantie

Kanker.nl initiatief van KWF Kankerbestrijding, patiëntenbeweging Levenmetkanker en IKNL (kenniscentrum voor zorgverleners in de oncologie)

Turkey

Lösemi Lenfoma Miyelom Hastalıkları (Leukemia, Lymphoma, Myeloma Patients Research and Education Society, LLMBIR)

Ukraine

There are no patient organisations currently listed for this country.

United Kingdom

MDS UK Patient Support Group

Bloodwise (formerly Leukaemia & Lymphoma Research)